Can I ask you, IF in the early years prior to a diagnosis when everyone claimed atypical child and it was your imagination - how did you cope with that?
Also, My son's school disagrees with his diagnosis. Easter we went to a friend's family and 3 of the people there deal with special needs children. All 3 of them approached me to talk to me about resources for him and were shocked to see the opposition I am getting from my District. I was crying because of the validation. Strangers can see it, my own son's school will deny him? Im beside myself. PDD and mood disorder and Sensory are his diagnosis now. I feel like I am going to explode!
My thoughts:
In response to the first question, It was really, really hard. I would just smile, nod, and walk away. If my first explanation didn't work, there was just no use arguing. If anything, it really hurt. No one understands more than mom and dad who live with the child. As far as the school goes, Chaz's first school did the same thing so we had to switch schools for his sake. I know how you feel. If they will deny helping him then he deserves better.
YES!!!! I deal with this and it is so disappointing! It really makes me feel like they think his behaviors are just bad parenting. It's so hard to not take it as an insult. However, would I rather listen to professionals or strangers who barely know Autism, let alone that there is an entire spectrum!? It is so hard.... I'm glad to see that I'm not alone because it drives me nuts!!! Have you found anything that really works?
ReplyDeleteMy son still can't even get into special ed preschool OR DDD. It is obnoxious and frustrating. I feel like screaming "DO YOU REALLY WANT HIM TO FALL BEHIND SO HE WILL QUALIFY!?! IF YOU KEEP THIS **** UP HE WILL!!" Urg. I can't wait for Kindergarten.... I may just show the bitchy side of me!